Your voice matters



UKTS with the help of individuals living with thalassaemia, parents/ carers and health care professionals throughout the UK, have created a few surveys to learn about YOUR EXPERIENCE of being treated by your thalassaemia/ haematology team over the past 12 months. We know that you may have filled several of these surveys before, but your answers will provide valuable feedback on the quality of care received by people living with or affected by thalassaemia and will help us to know what is working well and what needs improving in your current service.

UKTS Children with thalassaemia Survey
UKTS Parent- Carer Experience Survey
UKTS Post Transition to adult services survey
UKTS Adult Patient Experience Survey
UKTS Website Feedback Form
TM Magazine – Feedback Survey
Bone Marrow Transplant For Thalassaemia
Needle set survey for Patients / Parents/ Carers / Health Care Professionals

We are committed to ensuring you receive the best care and overall experience, so we welcome all your comments. Your comments will be shared with your team anonymously to help drive service improvement. Completing the full survey should take around 10-15 minutes. We greatly appreciate your time and involvement. Any questions, please email to Roanna Maharaj at


Thank you for helping us with this!