
Your voice matters
Do you receive your thalassaemia care in the UK?
If yes, we need to hear from you!
(For kids, teens, adults and parents/carers)

Resources & Publications
Publications, videos & information in different languages.

Magazines
Magazine archive.
Running this year’s London Marathon
Chloë Adlerstein
A thalassaemia patient who relies on blood transfusions every 2 weeks, is taking on the mammoth task of running this year’s London Marathon, raising vital funds for the UK Thalassaemia Society.
Find Out more & Sponsor me
Working together to create a better world
Facts about thalassaemia.
Informational videos and stories from our members and their families about what life is really like with thalassaemia
Haemoglobin Disorders Peer Review Programme
Invitation to join an online focus group to share your views about your experience and the care you receive from your haemoglobin
service. A review visit to Barts Health NHS Trust – Read More


Haemoglobin Disorders Peer Review Programme
Invitation to join an online focus group to share your views about your experience and the care you receive from your haemoglobin
service. A review visit to Homerton University Hospital NHS Foundation Trust – Read More
Ambassador’s Programme
Spreading the word about the charity
- Liaise with patients, families and groups in the area
- Organise local fundraising events
- Deliver engaging talks about the work of the charity
- Use social media to engage the community

Raising Awareness
Within the comunnity

Fundraising
Organise fundraising events

Our Causes
We need your help anytime anywhere

Vein finding equipment
Help us purchase the Airglove, enabling access to veins.

Research
Supporting cutting edge research into the treatment of thalassaemia.

Education & Awareness
Educating patients, parents, health professional and stakeholders
Become a member and keep up to date with our Magazine & Events.