New Diagnosis

Congratulations on the birth of your beautiful baby!


We know receiving a diagnosis of thalassaemia can be difficult and a daunting experience for your entire family. We are here to help you transition into this process.

We have created a few fact sheets and documents to help you in this period whether you received a diagnosis of the condition or a carrier result.

This will be uploaded on this page soon!

In the meantime, if you are a new parent, please see the booklet below. This booklet is designed for parents whose children have been diagnosed with a severe form of thalassaemia. It provides a basic guide to thalassaemia and signposts to sources of useful information and appropriate services for patients, their families and carers.

For information on a thalassaemia carrier diagnosis, please look at the section types of thalassaemia under the “what is thalassaemia page.”

Also, check out our members stories and parents’ corner for some awe-inspiring stories from some of our families.

Health professionals may also find this information useful.

In each section you will find references to where you can find further information. 

My Baby has thalassaemia booklet