International role


The charity has a high-level of participation internationally in the field of thalassaemia:

  • We are a founding Board Member of Thalassaemia International Federation with two seats on the Board.
  • We regularly provide resources and expertise in missions around the world to support patients in the developing and developed world. For example, we were part of a recent delegation visit to Nepal to meet with the Nepalese government and discuss ways to improve healthcare accessibility and provision for patients with thalassemia.
  • We are also an active member of EURORDIS (Maladies Rares).