UKTS Parent- Carer Experience Survey

ParentCarerOther
FemaleMaleNon-BinaryPrefer not to say
FemaleMaleNon-BinaryPrefer not to say
0-56-1011-1516-1818-2526-4040+
YesNo
YesNo
YesNo
YesNo
GoodFairPoor
GoodFair
YesNo
YesNo
YesNo
YesNo
YesNo
Yes, alwaysYes, sometimesNo
YesNo
YesNo

Blood Transfusions

Seen on time/ earlyWithin 15 minsWithin 30 minsWithin 45 minsOver 60 mins
Bad careModerate careGood carevery good careExceptional care
YesNo

Specialist Care and Monitoring

Twice a yearOnce a yearOnce every two yearsOther (please specify)
Every monthEvery 3 monthsOnce a yearI don’t know blood test are taken
Once a yearEvery two yearsNeverOther (please specify)
Once a yearEvery two yearsNeverOther (please specify)
Once a yearEvery two yearsNeverOther (please specify)
Once a yearEvery two yearsNeverOther (please specify)
YesNo
YesNo
YesNo
YesNo
YesNo (please go to Q42)
PoorFairGoodVery GoodExceptionally good

Thalassaemia Clinic Appointments

Very difficultDifficultFairEasy
YesNo
YesNoTo some extent
YesNo

Accident and Emergency

Once2- 3 times4-7 timesOver 8 timesNever (please go to question 56)
PoorFairGoodVery goodExceptionally good
YesNo
YesNo

Inpatient care / Ward

YesNo (Please go to Q54)
PoorFairGoodVery goodExceptionally good
YesNo

Support

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