Your voice matters

Do you receive your thalassaemia care in the UK?

If yes, we need to hear from you!


(For kids, teens, adults and parents/carers)


Resources & Publications

Publications, videos & information in different languages.

Find all UKTS publications, national clinical standards and other related information.


Magazine archive.

Read this season’s magazine or peruse through our archive.

UKTS Making a Difference

Working together to create a better world

Facts about thalassaemia.

Informational videos and stories from our members and their families about what life is really like with thalassaemia

Global Creative Art Competition 2023

This years theme is Fantasy & Fairy Tales

We learn from the characters in stories, even as adults. They help us because we connect to our own lives, dreams, anxieties, and consider what we would do in their shoes. Not only do they help us all to learn how to navigate life and build emotional resilience, it also crosses cultures and unites us all on a global level.


Ambassador’s Programme

Spreading the word about the charity

We suggest a minimum of 3 hours per month and a minimum of a one year commitment to the role, due to our investment of time and resources in recruiting, training and supporting you as an Ambassador.


Raising awareness
As an Ambassador, you will be part of a regionally based network, playing a key role in raising awareness of the UKTS within the wider community. This is a voluntary role which involves:
  • Liaise with patients, families and groups in the area
  • Organise local fundraising events
  • Deliver engaging talks about the work of the charity
  • Use social media to engage the community
Ambassador Role
Our Ambassadors work as part of a regionally based network and play a key role in raising awareness of our cause within the wider thalassaemia community and in leading regional support groups and fundraising initiatives.

Raising Awareness

Within the comunnity


Organise fundraising events

43+Years active
1771UK Patients
62UK Thalassaemia centres
2MInvested in Research

Our Causes

We need your help anytime anywhere


Vein finding equipment

Help us purchase the Airglove, enabling access to veins.



Supporting cutting edge research into the treatment of thalassaemia.


Education & Awareness

Educating patients, parents, health professional and stakeholders

Join us for a night of giving and dancing for a cause! Our charity dinner and dance for thalassaemia is happening on Saturday 4th November 2023 at the Penridge Suite in London!

Let’s come together to raise awareness and funds for this genetic blood disorder.
Every ticket sold will help to fund our projects, publications and research and help us support individuals living with thalassaemia.

So put on your dancing shoes and let’s make a difference!
Tickets are £50.00 each and available by contacting the office on 020 8882 0011

Spread the word using these tags:
#teamukts #CharityDinner #charitydance #dinneranddance #thalassaemiaawareness #dancingforacause

For those unable to attend and wanting to donate to the dinner & dance fundraiser please scan the QR code which would take you to the just giving page. Please do not use this link to purchase tickets – only donations

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