Your voice matters

Do you receive your thalassaemia care in the UK?

If yes, we need to hear from you!


(For kids, teens, adults and parents/carers)


Resources & Publications

Publications, videos & information in different languages.

Find all UKTS publications, national clinical standards and other related information.


Magazine archive.

Read this season’s magazine or peruse through our archive.

UKTS Making a Difference

Working together to create a better world

Facts about thalassaemia.

Informational videos and stories from our members and their families about what life is really like with thalassaemia

Global Creative Art Competition 2023

This years theme is Fantasy & Fairy Tales

We learn from the characters in stories, even as adults. They help us because we connect to our own lives, dreams, anxieties, and consider what we would do in their shoes. Not only do they help us all to learn how to navigate life and build emotional resilience, it also crosses cultures and unites us all on a global level.

Voting is now closed

Ambassador’s Programme

Spreading the word about the charity

We suggest a minimum of 3 hours per month and a minimum of a one year commitment to the role, due to our investment of time and resources in recruiting, training and supporting you as an Ambassador.


Raising awareness
As an Ambassador, you will be part of a regionally based network, playing a key role in raising awareness of the UKTS within the wider community. This is a voluntary role which involves:
  • Liaise with patients, families and groups in the area
  • Organise local fundraising events
  • Deliver engaging talks about the work of the charity
  • Use social media to engage the community
Ambassador Role
Our Ambassadors work as part of a regionally based network and play a key role in raising awareness of our cause within the wider thalassaemia community and in leading regional support groups and fundraising initiatives.

Raising Awareness

Within the comunnity


Organise fundraising events

43+Years active
1771UK Patients
62UK Thalassaemia centres
2MInvested in Research

Our Causes

We need your help anytime anywhere


Vein finding equipment

Help us purchase the Airglove, enabling access to veins.



Supporting cutting edge research into the treatment of thalassaemia.


Education & Awareness

Educating patients, parents, health professional and stakeholders

Asda Foundation Green Token


We have been nominated to be part of Asda Foundation Green Token Giving online vote through our Asda Southgate Circus store. The vote is now live and will continue until midnight on 30th April 2023.


The cause with the most online votes will receive a £500 donation, 2nd place of £400 and 3rd place £300.

Vote for us by visiting


You will be able to vote once every seven days, so please encourage everyone to return and continue voting in the following weeks. 


Become a member and keep up to date with our Magazine & Events.