Thalassaemia - a brief history
The thalassaemias are a group of disorders which affect
the production of red blood cells. They are genetic disorders, that is, they
may be passed from parent to child. Beta thalassaemia major is the commonest
clinically significant form of thalassaemia. People who have beta thalassaemia major (hereafter
referred to as "thalassaemia") will need medical treatment throughout
their lives. It is very important for a person with thalassaemia to follow
their treatment programme carefully. It is also important to remember that, although
thalassaemia is a serious, lifelong medical disorder, with modern medical
treatment it is manageable. Children who are born with thalassaemia in the UK today
should expect to reach their full educational potential, have careers,
relationships and even healthy children of their own. They should expect to
live a normal or near normal lifespan. To find out more about the different types of thalassaemia and their treatment select a link from the menu.
videos
A selection of educational videos for parents, patients and health care professionals
web links
Any advice offered through external message boards or web sites should be confirmed with a qualified professional before being acted upon.
If in doubt contact your GP or the UKTS.
pdf library
Download all UKTS information from here.
