Romaine Maharaj

Executive Director


Romaine’s introduction to thalassaemia came when her only child was diagnosed with the major form of the disorder in 1989. Once she realised that it was an inherited condition which was virtually unknown and was preventable, she threw herself into promoting awareness of the condition and became the lead advocator for adequate patient care in her birth country, Trinidad and Tobago. Despite a hectic schedule of managing a mortgage department for one of the largest banks in the Caribbean, she served as the President of the Society of Severe and Inherited Blood Disorders in Trinidad and Tobago for a number of years.

In 2004, she made a huge career change, moving across to the diplomatic field to join the team at the Trinidad and Tobago High Commission in London.  She also joined the UK Thalassaemia Society as a volunteer and served on their board of Trustees from 2010 to 2018. Romaine continued her advocacy role throughout the years leading several delegations to Trinidad and Tobago and arranging and accompanying a TIF delegation to some of the South American countries and Nepal.

In 2017, she was elected as a board member of Thalassaemia International Federation and has recently assumed the role as the Executive Director for the United Kingdom Thalassaemia Society. She was also part of the official delegation visiting Nepal on behalf of both societies.