I’m Jon and I will be celebrating my 42nd birthday soon. I am a beta thalassaemia major patient, diagnosed at the tender age of 10 months and have been treated in the Thalassaemia Unit at the Whittington since 1998.
Living with a chronic condition is challenging especially with rigid treatment regime one must follow just to remain healthy, regular blood transfusions, daily chelation medication etc. I must admit that I haven’t always been 100% compliant with my treatment and I tend to do things I shouldn’t, but I have always been honest with the Haematology team when asked, which is important.
I have been fortunate as well as the company I work for is very supportive when it comes to having time off for medical reasons or when I am feeling low, pre-transfusion. I am very grateful for my many friends at work especially I try to live each day to its fullest, to enjoy the times and days as much as I can.
I enjoy eating things I shouldn’t, travelling to new places, reading books and try not to take life too seriously. I am trying to keep up with my reading challenge this year. I always set myself a target of 50 books a year.
I am also happy to join team UKTS as an ambassador and look forward to working with the group to better the lives of our patients.