To make sure you receive the latest information on thalassaemia and thalassaemia related issues we sometimes need to remove information while it's being updated.

As all our information is supplied freely by medical professionals we can't always tell when their busy schedules will allow them to send the updates.

So while your waiting why dont you click on the link and watch some personal experiences sickle cell disease and thalassaemia disorders from carriers, patients and carers who give their account of what sickle cell or thalassaemia means to them. See their stories here.