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Are you completely happy with your thalassaemia services?
Are there things you want to change? It is essential that we in the thalassaemia community take every opportunity to make our voices heard. For example, when UKTS asks about “out of hours” transfusion facilities to make life easier for working people, we are used to being told by NHS managers “There’s no demand for it”. If we are to counter this kind of argument, we need evidence from our members on this and all the other issues which affect people who have thalassaemia.
Access to New Treatments for Hepatitis C
Hepatitis C InformationHepatitis C is a viral disease which affects the liver. It can go undetected for years, during which time it can cause significant damage...
Find out more and about or work with the Hepatitis Coalition here
Hepatitis C Position PaperThalassaemia International Federation's final position paper on Viral Hepatitis C in Thalassaemia - 2015.
Gilead Briefing: Access to new treatments for Hepatits C:
Comment has been rife for many months about the cost of Gilead’s new, curative treatments for hepatitis C and the impact of their introduction on NHS finances. This briefing is intended to provide interested parties with information on this topic and to update on treatment access for patients.
Read the Briefing.
Preimplantation Genetic Diagnosis (PGD)
PGD started nearly 25 years ago and thousands of babies have been born worldwide since then. In our centre we have been offering PGD to couples at risk of having children with serious genetic disorders since 1997 and are now in our 17th year of service. Over that time there have been many changes to what is offered and a significant increase in the number of referrals and PGD treatment cycles. Read More
NHS Prescription and other NHS Charges
The National Health Service Act 1946, which set up the NHS, contained a provision that NHS services should be provided free of charge unless that Act expressly provided for a charge.
Over the years amendments to legislation have been made allowing charges for NHS services including prescription, dental and optical charges..... More
Also read about the Prescription charge increase will hit patients say charities read how it affects you.
Rogues Picture Gallery
Conference And Event's Photos.
They say a picture is worth a 1000 words.
Until then catch-up with what thals are up to in the rogues gallery.
Give a little
We dont need the iron but we need your silver. By donating just a few pounds a month you help us to continue funding research into this potentially deadly condition which affects children and adults throughout the U.K.
Donate via the web, sms text or our on-line shoping portal.