Ashkaan Bandoui is a 30 year old thalassaemia patient, originally from Iran but living in London since he was two months old. He majored in graphic design at university but is currently working as a estate agent. He also enjoys playing the Iranian drum called the DAF which originates from Kurdistan and has been performing with a band for over nine years.





George is a beta thalassaemia major patient. He is a founding member of the UKTS, having served on the Management Committee from 1976-1985 and again from 1999 to the present day. George has been a tireless campaigner on behalf of thalassaemia all his adult life and has conceived and been involved with many UKTS projects including conferences and awareness projects. He is also serving on the board of Thalassaemia International Federation (TIF). George is a hotel manager by profession; is married and has a daughter.





Anand has lived with thalassaemia major for the past 30+ years. Though it has been a challenge at times, it has spurred him to succeed in life, particularly through school, university and now in a professional career. Anand has had the experience of being treated at a regional hospital with limited expertise in thalassaemia. He has been fortunate to have a great support network around him in life, and this has encouraged Anand to help others with thalassaemia and to make a difference in the community. As a life member of UKTS, Anand has seen the great work the society has done. Career wise, Anand works in the City of London in brand, marketing and communications (BMC) for one of the Big-4 accountancy firms. In the past, Anand has worked for a number of global accountancy and law firms in BMC. He has also been an active member of the Sikh community in Berkshire.





As a 42 year old beta thalassaemia major patient, I understand what it’s like to live with the condition and undergo treatment. I want to give something back to society and I believe this is the best way. I own and run a chain of estate agencies in Yorkshire; and as an entrepreneur I understand the importance of organisation, communication and networking. I believe I can bring these key skills from my professional life to make a valuable contribution to the governance and future development of the Society.





Romaine’s daughter Roanna is a beta thalassaemia major patient. Prior to moving to the United Kingdom in 2004, Romaine served as the President of the Society of Severe and Inherited Blood Disorders, Trinidad & Tobago. Romaine was also the Head of a mortgage division for one of the major banks in the Caribbean, her financial background spanning a period of twenty-three years. Currently she is attached to the Trinidad and Tobago High Commission in London and is also a board member of Thalassaemia International Federation (TIF).





Thalassaemia has always been an important feature of my life as I am both a brother and a parent of thalassaemia major patients. Having been born outside the UK, I have seen at first hand the sacrifices parents are forced to make to pay for life saving treatment for their children; and I am grateful that my children are well cared for. The staff of UKTS have always done their best to assist my family when asked; and I would like to give something back by offering whatever assistance I can to the management committee. I understand that there are currently no representatives from the Muslim communities on the Board of UKTS and I am pleased to be able to bring this perspective along with my personal experiences of being a brother and a parent.





Gabriel is a 40-year-old beta thalassaemia major patient; and has served as President / Chair of the Society for the past 6 terms. He majored in accounting and works in that field for a leading firm in London. In 2006, Gabriel became the first person in the world with thalassaemia major to complete a marathon race, a remarkable achievement. In 2013 he repeated this feat when he again completed the London marathon, raising funds for the Society and raising the morale of thalassaemia patients everywhere. Gabriel and his wife became parents with the arrival of their twin boys in April 2016.


Staff






Elaine Miller joined the UK Thalassaemia Society in 2002. She originally trained as a nurse and after her 2 children were born returned to study, gaining a 2:1 degree in law. During her first 9 years with the Society she was based in the London office; and was the first contact for anyone getting in touch with the Society. During her time with UKTS Elaine has represented the Society on committees and consultations; and has worked extensively on the NHS Sickle Cell & Thalassaemia Screening Programme, the peer reviews of haemoglobinopathy services, the education/ awareness programmes and the production of all three editions of the Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK.





Katerina Loizi-Read is a 58-year patient who has been a member of the UK Thalassaemia Society for the last 38 years. Katerina has been a previous board member for many years and has been the Office Administrator for the past 9 years. She is the proud mother of a 20 year old daughter.