The Society realised early on of the importance of a pain free alternative to Desferrioxamine which could also be afforded by those in less developed Countries. A massive programme of research was undertaken on the Society's behalf and funded directly by it which helped push the problem into the fore of medical inspiration.
The research into a new drug, "Deferiprone", an oral chelator, was funded by the Society outside of the pharmaceutical industry and is now being used in the treatment of thalassaemia.
The Society is now engaged in raising the Health Education of the at risk Asian Communities of the U.K. and has itself launched an extensive Awareness Project spanning three years up to July 2000. This project is designed to arm the Asian Communities of the U.K. with the same knowledge of the disease and prevention that the Mediterranean Communities received in the 1970's and the 1980's. The project has been made possible by a grant from the National Lotteries Charities Board and follows years of lobbying many interested parties including the Department (Ministry) of Health and the Health Education Authority (Non-Governmental Organization) here in the U.K.
The UK Thalassaemia Society is also involved in direct Welfare of Patients and provides Counselling services to sufferers and parents alike.
Watch a short PowerPoint presentation about the UKTS here.
UKTS Mission Statement
To be the definitive source of information, education and research
for those affected by or working with thalassaemia.
Committee Meetings & Membership
Committee meetings are every month and are normally open to members. Dates for meetings are available by contacting the office on 020 8882 0011.
Membership is open to all with an interest in thalassaemia. General membership is open to all however management committee membership is open to any member as long as they are not excluded by any other criteria as specified in the constitution.
Support our work by becoming a general Member.
Yearly Membership £10 per year single person
Lifetime Membership £100 single person - non transferable